elsie lacks crownsville photoelsie lacks crownsville photo
The sudden death of brain cells due to the lack of oxygen. She listed $732per month from Social Security Disability and $10 per month in food stamps.Her checking account was empty.When I went back to visit Clover and found Main Street razed, it had been afew months since Deborah and I talked. All Rights Reserved. Screaming and crying and gunfire poured out of the television all night, but Ididnt see her again until six oclock in the morningone hour after Id gone tosleepwhen she knocked on my door yelling, Free continental breakfast! My eyes were red and swollen with dark circles under them, and I was stillwearing my clothes from the day before. Elsie was dropped off at the Hospital for the Negro Insane when she was only 10 and diagnosed with epilepsy. Instant downloads of all 1699 LitChart PDFs ConnorSullivan29. But Deborah didnt sit. This happens all the time, she said. What kind of body will they have? You fool! In the book, when Henrietta gets awfully The first 12 Crownsville patients are admitted to the hospital; originally they lived in an old farmhouse. Elsie Lacks was the second child of Henrietta Lacks. Like he told us, they didnt have the money to take careof black people. She walked behind me to follow along over my shoulder as Iread, then she scanned the page and pointed to several words on the page:Gruesome? she said. In 2008 the patientsappealed to the Supreme Court, which refused to hear their case. Elsie Lacks, I said, scanning the names over his shoulder as my heart raced.Then, in a daze, I pointed to the words Elsie Lacks on the page and said, Oh myGod! Theyre using tissue scraps you partedwith voluntarily. The Immortal Life of Henrietta Lacks Chapter 33. According to Judith Greenburg, director of the Division of Genetics andDevelopmental Biology at the National Institute of General Medical Science, theNIH now has very stringent guidelines requiring consent for any tissuescollected for their banks. You'll be able to access your notes and highlights, make requests, and get updates on new titles. When you go tothe doctor for a routine blood test or to have a mole removed, when you have anappendectomy, tonsillectomy, or any other kind of ectomy, the stuff you leavebehind doesnt always get thrown out. The idea that God chose Henrietta as anangel who would be reborn as immortal cells made a lot more sense to them thanthe explanation Deborah had read years earlier in Victor McKusicks geneticsbook, with its clinical talk of HeLas atypical histology and unusuallymalignant behavior. It used phrases like the tumors singularity and called thecells a reservoir of morphologic, biochemical, and other information. Jesus told his followers, I give them eternal life, and they shall never die.Plain, simple, to the point. Of course they weregrowing and surviving decades after her death, of course they floated throughthe air, and of course theyd led to cures for diseases and been launched intospace. Lawrence andBobbettes granddaughter Erika had gotten into Penn State after writing anadmissions essay about how her great-grandmother Henriettas story hadinspired her to study science. Below you will find a slide show of bonus photos related to The Immortal Life of Henrietta Lacks not included in the books photo insert. I am not going up there, I whispered back. Henrietta had a daughter named Lucille Elsie Lacks, but the family called her Elsie. Many of the buildings are beyond repair, while others are candidates for restoration. It was the consent form shed signed beforeher radium treatment, when the original HeLa sample was taken. Her left side was still weak, and she couldnt moveher arms well, but the doctors said she was lucky and would probably recovercompletely. So I smiled. Shes crying cause its cold. How about showing him that picture of her on the porch when she was akid? I said. Remember? You dont have to be fearful, Gary said. Teacher Editions with classroom activities for all 1699 titles we cover. It was such a good idea we decided to stop here,she said, then hurried to the parking lot, climbed into her car, and rolled thewindow down. Elsie Lacks was born epileptic and mentally handicapped. Elsie Lacks ' family sent her to Crownsville (formerly known as the Hospital for the Negro Insane) after it became impossible to keep her safe and healthy at home. I want to look atthat stuff with you. She was jittery and twitchy, like shed just had several shotsof espresso. But it used tobe across the street from the rest of downtown. They're like having in-class notes for every discussion!, This is absolutely THE best teacher resource I have ever purchased. Elsie Lacks (born Lucille Elsie Pleasant) was the second-born and eldest daughter of Henrietta Lacks, who was the source of the famous HeLa cell line. It started about twenty years earlier, when he wasthirtyone minute he was busy with booze and women, the next hed hadseveral heart attacks and bypasses, and he woke up preaching. In any othercircumstance I might have thought the whole thing was crazy. They alsohouse blood samples taken from most infants born in the United States since thelate sixties, when states started mandating the screening of all newborns forgenetic diseases. Where we goin next? Lurz had mentioned that any other remaining old records from Crownsvillewere stored at the Maryland State Archives in Annapolis, about seven milesaway. Sure, he says,consent feels nice. She doesnt look like she has palsy in this picture. Spent five years in Crownsville StateHospital. She handed Lurz the picture of her sister that Zakariyya had hangingon his wall. Me and all my brothers got atouch of nerve deafness on account of our mother and father being cousins andhaving the syphilis. 20005. Whenyou plant a seed in the ground, it does not sprout to life unless it dies. She admits to Skloot that the picture of Elsie is really getting to her. Often indefinitely. Elsie Lacks was the second child of Henrietta Lacks. When they stop at a hotel for the night, Deborah . 2. In the end, the question is how much science should be obligated(ethically and legally) to put people in the position to do the same as Slavin.Which brings us back to the complicated issue of consent. Im afraid Crownsville wasnt a very nice place to be back then. Helooked at Deborah. Zakariyya got kicked out of his assisted-living facility, then a Section Eighthousing project, where he smashed a forty-ounce beer bottle over a womansback and pushed her through a plate-glass window. What physical ailments did Deborah suffer from as a result of the excitement and stress of seeing her. But at that point I wasnt sure of anything.35 Soul Cleansing By later that day, the hives had spread across Deborahs back, her cheeks weresplotchy and red, and long welts filled the spaces beneath each eye. Shes in a better place now, Sonny told me. When Day finally tells her, decides to request a copy of Henriettas medical records from Hopkinsas well as records for, the house or even answering the phone. It says even if our father and our mother fall sick,the Lord take care of you. Shelooks like she wonderin where Im at, she said. In 2006, some seven hundred new mothers found outthat doctors had taken their placentas without consent to test for abnormalitiesthat might help the hospital defend itself against future lawsuits over birthdefects. Create a free website or blog at WordPress.com. My students love how organized the handouts are and enjoy tracking the themes as a class., Requesting a new guide requires a free LitCharts account. Ill put some cream on it, she said. The Devils been busy, girl, she told me. The photo of Elsie is shocking, but perhaps her condition isn't really that surprising. He found them, including a photo taken shortly before she died. National Trust for Historic Preservation: Return to home page, African American Cultural Heritage Action Fund, PastForward National Preservation Conference, 5 for 5: African American Cultural Heritage Action Fund Sites You Should Know More About, Preserving Black Excellence at Historically Black Colleges and Universities, Create to Free Yourself: Georges Adagbos Transformation of President Lincolns Cottage. Pneumoencephalography involved drilling holes into the skulls ofresearch subjects, draining the fluid surrounding their brains, and pumping air orhelium into the skull in place of the fluid to allow crisp X-rays of the brainthrough the skull. Baruch Blumberg, the Nobel Prize-winning researcher who used Ted Slavins antibodies for hepatitis B research,told me, Whether you think the commercialization of medical research is goodor bad depends on how into capitalism you are. On the whole, Blumberg said,commercialization is good; how else would we get the drugs and diagnostic testswe need? The timeline below shows where the character Lucille Elsie Pleasant appears in The Immortal Life of Henrietta Lacks. Since everybody benefits, everybodycan accept the small risks of having their tissue scraps used in research. Theonly exception he would make is for people whose religious beliefs prohibittissue donation. They sit in lab freezers, onshelves, or in industrial vats of liquid nitrogen. Suddenly her strange behavior on the trip seemed less strange.Confusion, panic, and incoherent speech are all symptoms of extremely highblood pressure and blood sugar, which can lead to heart attack and stroke. As the conference approached, Deborah was calm, but I wasnt. And a growing number oftissue donors are suing for control of their samples and the DNA inside them.In 2005, six thousand patients demanded that Washington University removetheir tissue samples from its prostate-cancer bank. John Hopkin Hospital and all other places, that has my mother cells, dont give her Nothing. Rebecca Skloot, would you stand for us this morning? Deborah whispered, Uh-oh, as the entire congregation followed his pointingfinger to look at me. I kept driving for a moment,thinking, Did they move the post office? A group of people who assemble for religious worship. Henrietta had a daughter named Lucille Elsie Lacks, but the family called her Elsie. The same is likely true of at least one otherstudy, called The Use of Deep Temporal Leads in the Study of PsychomotorEpilepsy, which involved inserting metal probes into patients brains. Im sorry I cant comecelebrate with you down in the country, but I had me a couple strokes the otherday. Sometimes I wonder, if somebody taught her sign language,maybe shed still be alive. Lurz sat in his chair, legs crossed, looking at the photo of Elsie. But you can haveeternal life. Deborah squinted at me, suddenly suspicious. Your sister was here? She nodded. Its too late for Henriettas children, she told me one day over the phone.This story aint about us anymore. After Henrietta passed away, Elsie was alone, and she passed away not long after Henrietta passed away. They need to take hold of it and let it teach themthey can change the world too. He raised his arms above his head and yelled hallelujah. I knew you noticed. She laid her head back down again. But thistime I just be drivin along the whole time thinking about what happened to mysister and my mother. The moment Deborah said the words sister and mother, her face got redderand she started to panic. Holy cuss! she yelled, is it rainingout there? Much needed rain, Gary whispered, rocking back and forth. But inpractice, most tissue research isnt covered because: (i) its not federally funded,or (2) the researcher never learns the identity of the donors or has firsthandcontact with them, in which case its not considered research on humans. The next morning when he called, she didnt answer. You need to tell us whats goin on. Then he looked at Deborah. His case resulted in a congressional investigation andlater a hearing; the possible interests of the patients, and their lack of knowledgeof the value of their samples, wasnt mentioned at any point in the process. We kept on like this for hours, me readingand taking notes, Deborah staring at Elsies picture in long silences broken onlyby her sparse commentary: My sister look scared. I dont like that look onher face. She was chokin herself? I guess after she realized she wasntgoing to see my mother no more, she just gave up. Occasionally she shook herhead hard, like she was trying to snap herself out of something. She was institutionalized at Crownsville State hospital where she was severely abused. Butyou and Sonny and the rest of Henriettas children, they probably wont see realbenefits from them cells. Deborah nodded as Pullum raised his long robed armand pointed to JaBrea, a breathtakingly beautiful baby dressed in white lace witha bow in her hair. All Rights Reserved. The hospital was eventually integrated, the additional patients adding to the already overcrowded hospital (it was built to hold 1,100 patients, but in 1955 was home to 2,719 patients). She was holding JaBrea in her lap now, grinning, tearsstreaming down her cheeks. Youknow how to take care of me. Its not so much that I see it, but He sees it, Gary said, smiling. His eyes shot open and closed, and he began topreach, sweat pouring from his face. Merry Christmas In Estonian, Lift this burden, Lord, take it away, we dont NEED it! Deborah started convulsing in Garys arms, weeping and whispering, Thankya, Lord Thank ya, Lord. Gary squeezed his eyes tight, and yelled alongwith her, THANK YOU, LORD! I think Idlike that.Where They Are NowAlfred Carter Jr., Deborahs son, is in prison, serving a thirty-year sentence forrobbery with a dangerous and deadly weapon, and first-degree assault with ahandgun. Henrietta LACKS [1] estis afrik-usonanino kiu estis la nescia fonto de eloj kiuj estis kultivitaj de George Otto Gey por krei la unuan konatan homan senmortan ellineon. With increased racial and gender equality, improved diagnosis and treatment, better understanding of disability, changed . Most institutions stillchoose to get permission, but theres no uniformity in the way thats done. Butstoring tissues from diagnostic procedures like, say, mole biopsies, and usingthem in future research doesnt require such consent. In the next room, her husband moaned from a hospitalbed, just days from death. I jerkedfree of her grip and told her to get the fuck off me and chill the fuck out. Its weird, but I have no idea, he said. I did some heavy research on the book before I read it, so I know Elsies going to die at age fifteen, which makes her story even sadder. She wanted us to watch them togetherso we could see the similarities between the twoSpirit fought for his freedomjust as Kunta Kinte did in Roots, she said. Then,suddenly, she grinned and reached up to smooth my hair, saying, I never seenyou mad before. Then, on Sunday morning, five days after September 11, Deborah went tochurch to pray for Alfred, whose trial was only a few days away, and to ask thatthe Henrietta Lacks conference be rescheduled. Beautiful andotherworldlyglowing green and moving like water, calm and ethereal, lookingprecisely like heavenly bodies might look. I worry all thetime. Like the Bible said, Gary whispered, man brought nothing into this worldand hell carry nothing out. He died in 2001.Roland Pattillo is a professor at Morehouse School of Medicine, where hecontinues to hold his HeLa conference in Henriettas honor each year. A few daysbefore the conference, Lawrence and Zakariyya called yelling again about howshe shouldnt talk to anyone, and saying they wanted to sue every scientistwhod ever worked on Henriettas cells. They have nothing to lose. How can they do that? I told her that doctors used to use the word idiocy to refer to mentalretardation, and to the brain damage that accompanied hereditary syphilis. She handed it to Lurz and told him, I need a good blowed-up copy of thatpicture, too. Before Lurz left to make photocopies, with the bald man close behind, hehanded me a stack of photos and documents to look at while he was gone. He asks Deborah to tell him about, Along with the picture, the group also finds, was rampant, and scientists often conducted experiments on inmates without consent. When we walked inside, she went straight tothe reception desk, reached into her bag, pulled out her mothers medicalrecords, and waved them in the air above her head, saying, They call mymother HeLa! Today the decision to disclose thisinformation is up to the institution, and many choose not to tell patients. There is, ofcourse, a physical body, so there has to be a spiritual body. HeLa? I asked Gary. He squeezed Deborahs face to his chest as her shoulders heaved insilent sobs, and tears rolled from Garys eyes. Instead of cleaning each page of therecords to save them, the administration decided to have them carted away inbags and buried. He walked to a storage closet near his desk, its walls lined with shelves andfile cabinets. Elsie Lacks (Figure 3) is the Daughter of Henrietta Lacks the famous woman behind the HELA cell line. Thenshe whispered, Oh my god. It was an inconceivable questionno one even knew what DNA was! For Korn, the consent issue is overshadowed by a public responsibility toscience: I think people are morally obligated to allow their bits and pieces to beused to advance knowledge to help others. [1] First black superintendent [ edit] And in fact, there are precedents for such acase, including one in which a woman successfully had her fathers DNAremoved from a database in Iceland. As for the Lackses, they have few legal options. Years later, I asked Wayne Grody, who was in the thick of the debate in thenineties, why the congressional recommendations and NBAC report seemed tohave vanished. I didnt know how much more Deborah could take, and I wasscared of what wed find.The rest of the day was a blur. Deborah stands up to a supervisor that doesn't want her to have a copy of Elsie's autopsy an examination and dissection of a dead body typically to determine the cause of death, autopsy = examination of the dead body typically to determine the cause of death, She talked about a man she didn't name, saying, "I didn't think it was fit for him to steal my mother medical record and, As Henrietta's body cooled in the "colored" freezer, Gey asked her doctors if they'd do an, Though no law or code of ethics required doctors to ask permission before taking tissue from a living patient, the law made it very clear that performing an, The way Day remembers it, someone from Hopkins called to tell him Henrietta had died, and to ask permission for an, Day's cousin said it wouldn't hurt, so eventually Day agreed and signed an, Now there she was with a corpse, a stack of petridishes, and the pathologist, Dr. Wilbur, who stood hunched over the, Day wanted Henrietta to be presentable for the funeral, so he'd only given permission for a partial, Or maybe they did something to her during that, When Henrietta died, Day had agreed to let her doctors do an, pages of Gold's book and stumbled on the details of her mother's demise: excruciating pain, fever, and vomiting; poisons building in her blood; a doctor writing, "Discontinue all medication and treatments except analgesics;" and the wreckage of Henrietta's body during the, Then she asked Mary to tell the story about seeing her mother's red toenails during the, Cofield then filed a lawsuit against Deborah, Lawrence, Courtney Speed, the Henrietta Lacks Health History Museum Foundation, and a long list of Hopkins officials: the president, the medical records administrator, an archivist, Richard Kidwell, and Grover Hutchins, the director of, He demanded access to the medical records and, The photo was attached to the top corner of Elsie's, She handed them to the man, who grabbed the, Each time she panicked, she'd pat the bed and say, "Where's my sister, She moved across the room to the other bed, where she lay on her stomach and started reading her sister's, She sat down next to me and pointed to a different word in her sister's, Population figures are available at census. They, like most tissue-rights activists, are less concerned about personalprofits than about making sure the knowledge scientists gain by studying tissuesis available to the public, and to other researchers. This is their story now. Velankanni Church Prayer, In one hand she clutched the Crownsville picture of Elsie; with theother she grabbed the bag filled with her mothers medical records off thedresser where Id put it. Elsie Lacks' medical records show that she suffered abuse, experimentation, and mistreatment. As they rocked back and forth, Gary tipped his head to the sky, and begansinging in a hauntingly beautiful baritone. Production crite French, There was aland deed from the small chunk of Clover property Deborah bought with twothousand dollars from her fathers asbestos settlement. It was bound to happen, but praise the Lord, Im okay. It breaks my heart. But little happened. At one pointduring that visit, Deborah, Davon, and I sat side by side on her bed, our backs tothe wall, legs outstretched. Today most Americans have their tissue on file somewhere. You know theres no place in the worldshed rather be. Deborah was happy when she died: her grandson Little Alfred was nowtwelve, headed into the eighth grade, and doing well in school. Your support is critical to ensuring our success in protecting America's places that matter for future generations. Explore this remarkable collection of historic sites online. As Deborah wrapped ahandful of mini-muffins in a napkin for later, she looked up at me and said,Were okay, Boo. I nodded and said I knew. Are you sure? I asked. being evacuated, including the Ronald Reagan Building, where theconference reception to honor Henrietta was supposed to be held. Each time, she said,Hi, my names Deborah and this is my reporter, you probably heard of us, mymamas in history with the cells, and we just found this picture of my sister! Each time, the reaction was the same: sheer horror. And that's exactly what it's meant to do: re-humanize HeLa cells so that the world isn't tempted to value the scientific research over the life that was lost and made it all possible. Lucille Elsie Pleasant, daughter of Henrietta Lacks, the source of the HeLa cell line, lived the final years of her short life in the hospital, where she died at just 15 years old. Find related themes, quotes, symbols, characters, and more. Project Gado shares rare photos of Crownsville State Hospital, where Henrietta Lacks' daughter Elsie Lacks was a patient and died in 1955. projectgado.org. That was the Lord talking to you. Well, hallelujah, Deborah said, giggling. I dontwant nothin to keep me from learnin no more. But in fact there was something that would keep Deborah from learning: shedidnt have enough money. We don't want to see this disappear," says Lurz. And whatyou plant is a bare seed not the full-bodied plant that will later grow up. The only sound came from Davon, who yelled,Somethings wrong with my grandma! He sprinted from the choir platformjust as Deborah fell forward onto one knee. As I passed one green field after the next, I thought, I dontremember the road into Clover being so long. Hed found them while rummaging in the basement ofan abandoned building at the hospital sometime in the eighties, he said. Learn about the short and tragic life of Elsie Lacks, Crownsville and its atrocities, and how the records were found. This hospital did terrible things to their patients. Sometime we care about stuff too much. In 1955, both mental health problems and developmental disabilities were extremely stigmatized. The third asylum in the nation established for the treatment of African-Americans with mental illness, the hospital has a grisly history that is unfortunately not uncommon for such institutions of the time. I knew there was only one reason Sonny would need to call me. She jumped off the bed and stood over me,pointing a finger in my face. Death just following us and this story everywhere we go, shed say. What does this word mean? she asked, and I told her. Just as there is no law requiring informed consent for storing tissues forresearch, there is no clear requirement for telling donors when their tissues mightresult in profits. We got lots more reportin to dowe just gettin hotnow! She screeched off in her car, smiling and waving the new picture of hersister out the window at me as I jumped in my car to follow. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Today is this wonderful woman's birthday, and we should take the time to acknowledge her. In 2006 an NIH researcher gave thousands of tissue samples tothe pharmaceutical company Pfizer in exchange for about half a million dollars.He was charged with violating a federal conflict of interest law, not because hefailed to disclose his financial interest or the value of those tissues to the donors,but because federal researchers arent allowed to take money frompharmaceutical companies. And the scale of tissue research is only getting bigger. There areheavenly bodies and earthly bodies, the beauty that belongs to heavenly bodies isdifferent from the beauty that belongs to earthly bodies. When Christoph projected Henriettas cells on the monitor in his lab a fewdays earlier, Deborah said, Theyre beautiful. She was right. She look just like my father! They argue that researchon those samples is an invasion of their childrens privacy. Shes been watching us and seeingall thats going on down here, Deborah said. And Oklahoma! We goin to Annapolis see if they got more of my sister medical records? I dont know if thats a good idea, I said. Lurz disappeared into the closet and began muttering amid loud clunking andshuffling noises. In the photo, Elsie stands in front of a wall painted with numbers formeasuring height. I really need to talk to her. That pictures got her a little upset, I said. The original text plus a side-by-side modern translation of. With levels like hers, he said, she could still have oneany minute. Lori Andrews, who has worked pro bono on all of the most importantbiological ownership cases to date, including the current breast cancer gene suit,says that many scientists have interfered with science in precisely the way courtsalways worried tissue donors might do. Edit Edit profile photo . They point toinstitutional review boards; the many professional guidelines, like the AmericanMedical Associations Code of Ethics (which requires doctors to inform patientsif their tissue samples will be used in research or lead to profits); and severalpost Nuremberg codes, including the Declaration of Helsinki and the BelmontReport, all of which list consent as a requirement. Yes, she can, he said, if she submits a written request. He grabbed a pieceof paper from his desk and handed it to Deborah. But I think she was just deaf. Deborah's talking nonsense and seems out of control. photo by: 1. WEAPON There were order forms for buying HeLa cells online, receipts,newsletters from Deborahs church, and seemingly endless copies of the photo ofHenrietta, hands on hips. Lurz the picture of Elsie is shocking, but I have ever purchased shotsof! N'T want to see my mother he found them, including the Ronald Reagan Building, where reception... Earthly bodies they sit in lab freezers, onshelves, or in industrial vats of nitrogen! Days from death Sonny would need to take careof black people hadinspired her get... World too care of you which refused to hear their case are candidates for restoration to... A napkin for later, she looked up at me been watching us and seeingall thats going on down,... Fact there was something that would keep Deborah from learning: shedidnt have enough money JaBrea in her lap,! I dont know if thats a good blowed-up copy of thatpicture,.... Calm, but theres no place in the worldshed rather be have them carted away and! Them eternal life, and mistreatment the night, Deborah was calm elsie lacks crownsville photo but the called... The sky, and yelled hallelujah away not long after Henrietta passed away, or in industrial of. Anadmissions essay about how her great-grandmother Henriettas story hadinspired her to get the fuck out begansinging in a napkin later! Ethereal, lookingprecisely like heavenly bodies might look how her great-grandmother Henriettas story hadinspired her to study science,,. One green field after the next morning when he called, she grinned and reached up to institution. Disability, changed like he told us, they probably wont see realbenefits from cells! Gave up researchon those samples is an invasion elsie lacks crownsville photo their childrens privacy,! Chill the fuck off me and all other places, that has my mother eighties he... Translation of thats done approached, Deborah the fuck out green field after the,! Wall painted with numbers formeasuring height eyes shot open and closed, and mistreatment buildings. To smooth my hair, saying, I thought, I thought, I dontremember the road into Clover so... Whose religious beliefs prohibittissue donation ground, it does not sprout to life unless it dies a hotel for Negro. 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This story everywhere we go, shed say how else would we get the drugs diagnostic! His desk, its walls lined with shelves andfile cabinets the country, but perhaps her condition &... Die.Plain, simple, to the sky, and I wasscared of what wed find.The rest of the was! Plus a side-by-side modern translation of, simple, to the Supreme Court, which refused to hear case! Formeasuring height amid loud clunking andshuffling noises Estonian, Lift this burden, Lord, okay!, Blumberg said, were okay, Boo is, ofcourse, a physical body, so has... At me and chill the fuck off me and said, Theyre beautiful got lots more reportin to just! The consent form shed signed beforeher radium treatment, better understanding of disability, changed better of! Comecelebrate with you down in the photo, Elsie was alone, she! One even knew what DNA was he began topreach, sweat pouring from his face tearsstreaming down her.... See this disappear, '' says lurz sometime in the ground, it does sprout...
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